In June 2026, I met Marg online to talk about her experience of living with a rare condition, and in particular about searching for and accessing clinical trials. Marg lives in Canada and has spent more than 20 years learning about LGMD2i, the muscle-weakening condition she was eventually diagnosed with. LGMD2i, also known as LGMDR9, […] The post Ready, willing and prepared: living with LGMD2i and navigating clinical trials appeared first on myTomorrows .