Jax's Story: Finding Hope and Expert Care for Congenital Diaphragmatic Hernia at CHOP

Jax’s Story: Finding Hope and Expert Care for Congenital Diaphragmatic Hernia at CHOP douglassc@chop.edu Mon, 09/14/2026 - 15:34 For the first half of Kayte’s pregnancy, every appointment seemed to bring more questions than answers. From 12 to 19 weeks, ultrasound scans showed something unusual. Doctors noticed extra fluid on the back of her baby’s neck, leading to more testing, including genetic testing and an amniocentesis.